ZEBRAS EHLERS DANLOS SYNDROME | PROGRAM
Your path to an EDS/HSD diagnosis and treatment plan starts with an examination. There may be physical testing: using the Beighton Scale to assess how mobile your joints are, a search for abnormal scarring and testing your skin to determine what it feels like and how much it stretches, as well as any additional tests we or our specialist colleagues feel are needed. There’s likely to be a look into your medical history to look for conditions and problems associated with EDS/HSD, and a discussion of your family to help determine if an EDS/HSD was inherited.
THERAPEUTIC NEUROSCIENCE EDUCATION SESSIONS
One-on-one therapeutic neuroscience education sessions will cover the following topics dependent on the patients’ needs assessed during the initial assessment and continuously monitored and discussed between the patient and therapist:
Pain physiology education
Home based movement prescription
Connective tissue education
Goal Setting / Gradual Exposure Planning
Trigger identification & Prevention
Sleep Physiology / Hygiene
The Stress Response
DIMS / SIMS
Gradual Return to Work & School
Graded Motor Imagery
We know the importance of a holistic program in the management of Eherls Danlos Syndrome. Movement sessions will be introduced after an initial musculoskeletal assessment and movement screening has been conducted. Movement sessions are carefully constructed and monitored (during and after the completion of the session) to ensure that PEM is NOT triggered by the movement session. These sessions may consist of: one on one or small group Exercise Physiology sessions, Pilates, Physiotherapy, anti-gravity treadmill or yoga and will focus on:
Personalised Movement Prescription
Address Musculoskeletal Injuries
Supervised & Home Based Programs
Physical Load Monitoring
Breathing Through Movement
Re-conditioning / improve blood flow
Psychology sessions involve education and psychological approaches to manage chronic health issues. These sessions also target any psychological challenges which may have developed due the chronic condition (eg. anxiety, depression) or unrelated factors which may affect mood and stress levels which are likely to impact on symptoms.
The Impact of Fatigue
Acceptance Commitment Therapy (ACT)
Addressing Barriers to Change
Cognitive Behavioural Therapy (CBT)
The goal of these sessions is to have an enjoyable, relaxing experience and to stimulate the parasympathetic (rest & relax) side of your autonomic nervous system to reduce sympathetic overload. These techniques will be implemented within the Zebras facility at also at the patients home.
Restorative Yoga and Pranayama
Start your road to recovery with Australia’s most collaborative and Ehlers Danlos Syndrome program.